About Dystonia

What is Dystonia?

Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. This disorder affects 300,000 people mostly children in North America alone. There is currently no cure for this disorder.

Watch This short video on Living With Dystonia prepared by The Dystonia Medical Research Foundation (DMRF)

Learn More About Dystonia

Dystonia and the Jewish Community
The impact of DYT1 dystonia on Ashkenazi Jews is significant—tens of thousands of families in North America are besieged by this insidious
genetic disorder that disables children, skips generations only to recur, and devastates families.

This community has suffered greatly from this disease, and it is believed that better treatments and ultimately a cure are possible by paying close attention to how dystonia affects Ashkenazi Jews both as a population and as individuals.

The Medical literature is lacking in definite data regarding the frequency and prevalence of this disorder, but the latest sources state that less than 1 percent of the overall population are carriers of the DYT1 mutation. Among Ashkenazi Jews, the frequency is at least 3-5 times higher.

Nebraska Dystonia Support Group
This SUPPORT GROUP is for those with Dystonia (disorder that is characterized by distorted twisting or movement of all or a part of the body which may be caused by toxic or infectious diseases of the nervous system or be of unknown etiology).

Physical Address:
Madonna Rehabilitation Hospital
5401 South Street
Lincoln, NE 68506

MEETING TOPICS includes coping with pain, medications, relaxation, neurology and general speakers.
Participate in our online Fundraising Store

http://my.fundraising.com/DystoniaMedicalResearchFundraiser

 

Our goal is to raise $2000 through our online store. We hope you will help support our fundraising campaign by ordering or renewing your favorite magazine subscriptions online and sharing our store site with your friends and relatives.

With your help, we are sure to earn the funds we need this year! Thanks again for your consideration! We appreciate your support!